From next Sunday onwards, on Sundays, I’m going to be posting a recovery-focussed post. Today though, I thought I’d write an update post to highlight where I’m at:
- Because I need to express in words what’s going on and,
- Because you will begin to understand why I’m so recovery-focussed on future Sundays. (It’s not because I believe that I have all of the answers but, if I find any, I want to share them with others facing similar issues).
This last week and a half has been awful mood-wise. As those of you who have been reading this blog for a while will know, as well as a diagnosis of Borderline Personality Disorder, I’m also physically disabled (Ankylosing Spondylitis – a form of inflammatory arthritis).
I’m actually in the process of starting up a blog about my life with AS as I’d like Brokenglassshimmers to be about mental illness and mental health recovery, as well as the issues that those of us with mental illness face. There is a reason for me mentioning my AS in this post, as you will see shortly…
I had an appointment with the rheumatologist almost 2 weeks ago. Because of the level of physical pain and stiffness I was struggling with (which was, in turn, bringing me down mentally), he reluctantly, as he knew about my mental health diagnosis, prescribed steroids.
It took a lot of persuasion from me, and a promise that at the first sign of any problems, I would stop them. I felt confident as I’d previously had steroids around a year ago and, looking back with rose-tinted-specs, thought that I coped ok with them.
Instead they have caused me nothing but mental health problems. My anxiety and panic attacks are back with a vengeance, so whereas before I was hoping to wean myself off Diazepam, I’m back to taking the full, prescribed dose.
My sleeping is also all over the place, if I wake in the night I struggle to get back to sleep. I am back to having really severe mood swings, I am extremely over-sensitive and paranoid. Plus my social anxiety is back, so I’m literally shaking with fear about the thought of attending the creative writing group that I began before the steroids.
Why don’t I stop them? You may be thinking. I actually did, a week ago, and I’m still experiencing symptoms, although in total, I was only on them for a few days.
I veer from drained but unable to sleep, to buzzing with ideas. Internally I’m exhausted from the anxiety and lack of sleep and, to top it off, because I’m no longer on the steroids, there is nothing to stop the really bad flare-up that I’m having, of my AS.
So I’m worse than back where I started from. I feel lonely and isolated, but terrified of people. I go from wanting to hibernate to buzzing with ideas.
Sometimes I feel like a fraud for writing about mental health recovery when I haven’t ‘recovered’ myself, but the reason I do is because I’m so desperate for answers, a way to stop the torment that I’m in, and a flicker of hope that things can get better.
What do you think about recovery-focussed posts? Do you find them helpful? I can be contacted in the comments section below or on Twitter @spursbythebeach. Look forward to hearing from you!