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Day 2 Life as a mental health service user – week special

I’ve been really testing the patience of my care team this week. I have been struggling so much that I have done nothing but call helplines, crisis teams and my Community Mental Health care team. I have been struggling so much that at some points I couldn’t see any future for myself. My mind is so conflicted and I’m scared of what I’m capable of.

I have had phone call after phone call with my social worker this week, and she has calmly explained all the things that she is going to try to do to attempt to make my life better. Things like attending a mental health day centre with me to improve my confidence about being there, surrounded by new people, when that’s exactly what I need.

The Occupational Therapist asked me to fill in a form about which goals I wanted to focus on for my recovery. I struggled to choose just a few goals when there is so much of my life that is chaos, a complete mess.

My first goal was improved concentration. To do this I need to organise my surroundings as well as my mind. I have boxes everywhere from where I’ve only just had my stuff out of storage, as I was in hospital for the first few months I had moved into the flat.Someone kindly stored my possessions but they had to drop the last of it off recently and now I’m overwhelmed by boxes. My mind needs to be sorted out too. I’m in therapy with the CMHT psychologist, and I’m also seeing the rest of my care team but it’s so hard. I feel like I’m stuck in limbo waiting to get better, and I want to be able to start moving on with my life. Instead I’m stuck in this rut, and it feels like I’ll never get out of it.

My second goal was improved energy levels, physically and mentally, so that I can do what I set out to do. This means really campaigning for the right treatments so that I can have better pain management and less fatigue. I’m due to see the rheumatologist towards the end of June and I’ve finally decided that if I’m not satisfied with the treatment plan decided then I’m going to ask for a second opinion. I’m also temped to do the same with my psychiatrist care.

My third goal is to take better care of the flat. To do that I need to deal with my debts, budget better and apply to anyone who can help me to improve my situation. I’m sick of living in a shell of a flat. I want a home. I’ve moved around so much during the past decade. The problem is I don’t want to settle down here, I miss my family and friends in London but I can’t afford to get over there. I’m so depressed here in this city on my own, I just want to be surrounded by people who care. I know that might be wishful thinking where my family are concerned but I have some good friends there, and London will always be my home. I feel trapped.

I will discuss my other goals in later posts. At the moment I feel exhausted and sad and frustrated. I just want to be happy and it feels like, despite the efforts of my care team, that that will never happen.

Do you have any goals that you’re struggling to reach? What are your obstacles and how do you plan to overcome them? Get in touch in the comments section or on Twitter @spursbythebeach.

Weekly special: Life as a mental health service user

I was depressed from childhood, self-harming in my teens. From the age of seventeen, I have been in and out of therapy. Age 21 I was given my first of a few diagnoses. I had Bipolar disorder and began seeing an amazing psychiatrist as an outpatient. I define him as amazing because he actually believed that he could make me better, and he never gave up hope that he would.

After my marriage broke down in traumatic circumstances, I moved to a different area and was dealt with by a different mental health team, including a Home Treatment Team. Their psychiatrist, based on my self-harming behaviour, decided that I had Borderline Personality disorder.

At first I fought against this diagnosis, there was nothing wrong with my personality! But the more I researched the condition, the more I identified with it.

Since then I have spent time having my care managed by the Community Mental Health Teams in a few areas. I have paid for private help out of my benefits, and I have been a voluntary patient in an NHS psychiatric hospital

I know that there are many others who have experiences with similarities to mine and differences that should also be discussed.

Before doing this week-long special into life as a mental health service user, I thought about the kind of posts I would have found useful/supportive throughout my mental health journey.

I am keen to hear from others who have ideas for other posts/interviews I could do, and I can be flexible in extending this week long special into a longer running or more regular theme on Brokenglassshimmers. I am completely open-minded about where my initial ideas will take me.

These are:

  • Things to remember before a meeting with your Community Mental Health Team care manager.
  • How to get help from a UK Community Mental Health Team -the obstacles that can be stacked against you and how to face them.
  • Who to approach in a crisis – is it a postcode lottery?
  • Things I wish I’d known before my psych ward stay.
  • Things I wish I’d known before being discharged from the psych ward.
  • Care in the community – different experiences of therapy.
  • The future of mental health services
  • Fighting for mental health care

If you have any comments or suggestions about these topics and/or would like to get involved then please comment below or tweet me @spursbythebeach

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