At least a few times a week I have decided to challenge myself, by giving myself an alphabetical theme to blog on. Each theme will be related to living with mental illness/ physical disability. I am also going to do the same challenge on my FBL blog Lifelovesandlipgloss.wordpress.com , although often using different topics for the different blogs.
I chose to write about anger first, because it is something that I struggle with a great deal.
My experience of anger as a child, my parent’s violence and emotional abuse, taught me how much expressed anger can hurt others, so I tend to BOTTLE IT UP.
My anger is mainly triggered by memories from the past which leave me feeling POWERLESS and UNABLE TO ESCAPE, stress which also leaves me feeling BACKED INTO A CORNER as well as UNABLE TO COPE, and being unable to cope leads to a great deal of FRUSTRATION, which makes me want to EXPLODE.
Turning it inwards
Instead of expressing my anger and frustration in a healthy way, I turn it inwards and attack myself. At first it starts off as a mental attack. INSULTS, ABUSE, SELF-HATRED. The things my parents and the bullies at school used to say to me, I say to myself: Ugly, fat, useless, pathetic, unwanted, better off dead.
The negative self-talk can only go on for so long before the anger bubbles over, like I’m in some kind of pressure valve, and I end up wanting to act on the negative feelings I hold towards myself, by physically causing myself pain, also known as SELF-HARMING.
Searching for a new anger-management strategy
At the moment though, I’m desperate not to follow the old negative patterns. I feel STUCK, TRAPPED. I know that I will lose my partner if I end up self-harming or attempting suicide again, and, if I do, I am also likely to end up back on the PSYCH WARD.
I’m trying so hard to change things. Firstly, I try to FILL MY DAY so I don’t have too much time to dwell on things. I try to do things that I know will RELIEVE MY TENSION, from watching a favourite TV show, to colouring in or other creative-type stuff. Blogging also really helps. It helps me to EXPRESS MYSELF in a CONSTRUCTIVE way and to feel LESS ALONE, when I realise that others are struggling with similar issues.
Hopes for the future
My hopes for the future are that my feelings of anger will lessen and I will FEEL MORE IN CONTROL of my anger,that I will learn to express it in a healthy way, that doesn’t leave me with feelings of REGRET after yet another explosion.
Do you struggle with anger? What ways have you found to manage it? What helps you to cope better with it? Either comment below or Tweet me @spursbythebeach.
For far too much of my life, I’ve felt like hiding from the world. It started when I was a child. I was ashamed of the way I looked, afraid of the bullies, worried my parents would embarrass me/kick off when they were drunk.
Now I’m almost 30 and not a lot has changed. This time it’s social anxiety, fear of being judged for my disabilities and severe depression, in which I feel like being around people just makes me, and them, worse.
There are things I’d like to do: Blogging meet-ups, physiotherapy groups, day centres, book clubs. Even when I was thinking about starting university the anxiety about being around hundreds of people during lectures, freaking out about fresher’s week and how I was going to go it alone as a disabled person and make friends, was tearing me apart.
I’d love to have another chance at education but at the moment my anxiety and depression are so bad that I’m constantly changing my mind about whether or not I should give it a try, because I don’t feel like I’m good enough. I’m not living, I’m existing.
I want to be a journalist and was given the opportunity to blog for my local newspaper but I’ve bottled out of doing it more than one time because I’m worried I’ll make a fool of myself. I know that sounds strange coming from a mental health blogger, but I’m ashamed to admit that negative feedback terrifies me. It causes me to beat myself up and is the reason I’ve spent too long hiding away or not doing the things that I love.
I want to change and I know that the only way that I can do that is with one small step at a time. I’ve started Slimming World and trying to wear make up more often so that I can be more physically confident. Mentally, is another matter entirely. I’m so scared of getting hurt or messing up. I’ve just started seeing a psychologist and I’m really hoping that it makes a difference as I’m so tired of being like this.
Being honest about how I feel, especially on here, helps a lot. The support I’ve received from Brokenglassshimmers’ followers, has meant so much.
I’m thinking about branching out with the blog too and doing an email newsletter for followers to chart my progress, what works/what doesn’t, perhaps even interview some of you too if you’re interested. If you would like to receive something like this then please let me know. I’m available on here as well as on Twitter @spursbythebeach .
Bottling things up
I’m so tired of bottling things up. Of putting up and shutting up. There is so much I want to say and the truth is I don’t know where to start, or whether or not it’s worth starting, when all it’s likely to do is finish off burning, the already burnt bridges.
I said in my last post how tired I was of one-way friendships, we agreed on Twitter that it was time I made new friends well perhaps that is true. If that’s the case though, why is it so hard to let go? Why am I reminded of the good times we shared and left wondering ‘what if?’.
I blame myself, for pressing the self-destruct button on my life and pushing away the people I cared about. Now they’re pushing me away and while I’m at this vulnerable point in my life, it really hurts.
Sometimes women in their twenties and thirties still behave like Mean Girls. There is still so much ignorance about mental illness and hospitalisation, even from those with mental illness themselves.
Then when I think to myself that at least, whatever I’ve lost, I’ve always got my partner, he starts to push me away, which leads me to feel extremely insecure. He may be in prison but usually it feels like he’s the only one I can count on. Since my financial problems though, things have changed. At first he was really supportive, a huge encouragement. Now though it feels like he has forgotten what we’ve both been fighting so hard to achieve.
I am becoming more and more reliant on Lorazepam and sleep as a way of getting through this awful period. As a matter of fact, I can hardly keep my eyes open now, so I’m off to hibernate for a little while. Hopefully I will make more sense when I return.
I thought I’d give you a brief update of what life is like, just over a week after I was discharged from a psychiatric hospital.
As most people probably find when they leave a long-term hospital admission, my financial situation is a mess. No DLA (Disability Living Allowance) has materialised since I got out and it could be weeks, if not months, before this is resolved.
This is extremely worrying as I have now got into heaps of debt, struggling to pay for my carer as well as other disability related expenses. Money is such a worry right now, it must be for me to even be mentioning it on here, for me to be crying down the phone to my dad during his out of the blue phone call today.
I spoke to my new Community Psychiatric Nurse (CPN) and social worker, and I’ve been instructed to write a list of how much I owe and to whom, so that they can help me to take action against it. I’m so worried about what that action will involve, and I wish more than anything that my physical and mental health weren’t so bad that I could go back to work and repay what I owe.
Also playing on my mind is that I will be waiting at least 4-6 weeks for an outcome in my PIP (Personal Independence Payment) assessment with Capita. I’m so worried, as without that financial help, my future options for paying for care and mobility related costs, will be greatly limited.
My care managers are trying to make a referral for me for additional support but I will still need the practical support that I get from my carer, as long as I can afford to pay for it, which is becoming less and less likely.
I’ve tried to continue writing, both blogging and creative writing. I’ve sent off a couple of pieces to competitions and the blog has had increased popularity in recent days, but this is causing me quite a bit of frustration as I’m still having to juggle my blogging/writing with how well I feel.
There are days I spend the majority of my time in bed and other times I’m in so much pain or having so much fatigue that I can’t concentrate on what I want to be able to do.
The level of my isolation is still really bad. Hardly anyone has been near me since I got out of hospital and even the ones who have, usually only want to meet on their terms.
I can’t help but feel sad at how far I’ve deteriorated in the past year. This time last year, I was all set to return to London to study for an English degree, I’d even given up my council flat to move into private accommodation nearby. Due to misinformation from different people at DWP, eventually causing me to become even more unstable than I was in the first place, I had to move back to Wales or risk -and here’s the joke – getting into debt.
Now things are so dire financially, I’m miles behind where I was academically, and emotionally I feel like I’m in ruins. I was counting on getting that degree so much, I had it all pictured in my mind, I was going to put everything I had into it and now I’ll probably never get that chance again.
The odds were always going to be stacked against me, living with disabilities, but now I haven’t even got a degree to show for it, my life looks as though it has been one huge waste.
I long to become a writer or journalist. I wanted so badly to get my voice heard but now I feel like it is being stifled.
I get frustrated blogging about how bad things are and I’m sure that you all get sick of hearing about it. Why doesn’t she just do something about it? I bet people are thinking. Well, I’ve tried and it’s left me in a worse position than the one I was in to start with. I feel like there isn’t a single move forward that I can take, like I’ve been checkmated.
Well a lot has been happening in the Brokenglassshimmers household. First of all, as of today, I am officially discharged from hospital. I am no longer a psychiatric ward patient. The enormity of it all, makes me feel emotional. It feels like the safety net keeping me from falling through the cracks has gone and now I’m scared.
Everyone is trying to get me to focus on the fact that I’ve lasted on leave for over a fortnight, but that survival has been such a huge battle to achieve. The Ward psychologist, during our last appointment today, helped me to figure out a few things.
Firstly, if I was well already, hospital probably wouldn’t have been the best place for me in the first place. Being hospitalised, even as a voluntary patient, has a huge impact on your life. Being hospitalised for about four months, the length of time that I spent on the ward, then learning to adjust again to life on the outside, is a huge leap of faith. You have to learn to trust yourself again. You have to find even the smallest shred of hope and faith that you can, and claw back your fighting instinct, so that, maybe one day, you get yourself back again.
Secondly, he talked about my too-high expectations of myself. I’ll be completely honest now and this will probably sound really pathetic, but after a year or more of blogging, I beat myself up for not having got to the level that I want to be at by now. That’s not even necessarily about followers, comments, or likes, although those things are really appreciated. I beat myself up that my standard of writing isn’t good/hasn’t improved enough.
The same applies to my creative writing, the only way that I can improve is by practice and feedback but I lack the motivation to practice and get feedback because aside from my pain, fatigue and concentration problems, I’m not happy with the level that I’m at when I do write. The psychologist encouraged me to keep trying so that I do at least have a chance of success, whatever that success looks like is another matter.
Thirdly, he told me not to put up barriers when I’m challenged. He explained that part of my new psychological input from the Community Mental Health Team (CMHT) will probably include empathy and validation, but that the other part of it has to be about challenging me to change longstanding thoughts and behaviours. He also told me how important it is that I learn to validate myself and that although I use the love of others, mainly my partner, as a reason to keep living, I need to want to live for my own sake, my own dreams and aspirations.
I confided how disappointed I am that I haven’t achieved more with my life, that I feel like I’m just existing, begging for help but not getting enough of it to really have a life.
As I left the ward, I felt so many mixed feelings. A longing to go back to the very beginning and really make the most of every bit of treatment that has been made available to me, a dream to never see that place again, a sadness at the time I wasted whilst I was ill and a recognition of how much I’ve grown and learnt both about myself and others.
In other news, I’m majorly freaking out about my Personal Independence Payment (PIP) assessment with Capita this Wednesday. I’m worried sick that they won’t listen to me or will fail to understand how much of a challenge life is for me. I need them to see how much of an impact my physical disability and mental illness has on my daily life and how reliant I am on the care that my Disability Living Allowance (DLA) pays for, how isolated I would be without that care, how my life wouldn’t be worth living if I lost that help.
My carer is going to go along with me but she’s just as nervous as I am as she knows how much of an impact this decision will have on me.
Lastly, there has been a new addition to my family. Kitty is a beautiful cat who I got from an RSPCA animal rescue centre yesterday and I can’t believe how well she’s already settling in. It meant so much to me having her trust me enough, after all that she’s been through, to lay on the bed with me for a little while on her first night with me. I know that she’s going to be a big responsibility and it is hard looking after her when I can’t even take care of myself . But however much discomfort it causes me physically, the love that she gives means so much that I’m going to do my utmost, with the help of my carer, to take really good care of her.
What keeps you going? What are the things that you beat yourself up about and what encourages you to keep fighting? What would you do if you were no longer beating yourself up about what you get wrong? What could you achieve? Please feel free to comment below or tweet me @spursbythebeach .
Today my best friend turned 30. I feel ashamed that I have done so little to celebrate it with her, and that it’s also left me with very self-centred thoughts about what turning 30 will be like for me, when life feels like it’s on hold due to mental illness and physical disability.
There is so much that I thought I would have achieved by the time I hit 30: Having a family, a career, an active social life. It feels like none of that will never happen. I think instead of focussing on all of the things that won’t happen, I need to focus on the things that could happen. Perhaps they will be smaller goals and achievements than I once would have set for myself (I’m sure even some of them may still prove impossible) but I really believe that it’s worth a try as I’m about ready to give up unless I give my mind something positive and new to focus on.
1. Write a collection of short stories based on some of my life experiences. Do my best to submit them to short story competitions and publishers, to see if I can work towards making my writing dreams come true.
It has been my dream for as long as I can remember to be an author and I really enjoy writing stories, I just haven’t put as much time into it as I should have. I would love to reach 30 and be well on my way to becoming a published author.
2. Build up this blog. It has been a real lifeline for me and I hope in time that it will become a lifeline for others. I would love to use it to challenge stigma and raise awareness of the issues that I, and many others face.
That means making the time to research and post every day. It will be a challenge, especially with my creative writing goal but it’s one that I would be very excited to achieve.
3. Start facing up to my financial difficulties. Speak to someone about managing my debts and apply for all the benefits that I am entitled to because of my disabilities.
This is quite an urgent problem and one I will be discussing with my new care manager when I meet her tomorrow.
4. Start living to a budget. Cut down on reckless spending and become more responsible.
Again, hopefully this is something I can work on with my new care manager as well as looking in therapy at the reasons behind my spending, as I’m pretty sure that many of the reasons are emotional ones.
5. Become less isolated. Work out ways to meet new people/make new friends including therapy groups, mental health day centres and possibly some short courses at my local university.
I’ve been putting off doing this for some time now, especially as I’ve been having to deal with my old enemy, panic attacks, and being around strangers often triggers this. I would like to do something though especially as I feel so alone right now. Another thing I’m considering doing is restarting the weekly mental health Twitter chats that I used to host.
6. Decide whether I want to go back to uni again. I have tried and failed on so many attempts, do I really want to put myself through this?
Last year’s attempt went so badly that it’s sort of scared me off but I’m aware that establishing a career as a writer will be a lot harder without the relevant training.
7. Find a GP who has empathy for how much pain I am in and is proactive about fighting to help me to get the treatment that I need.
I am planning on signing up with a new GP this week as I’ve just moved house. I’m very nervous about finding the right GP though.
8. Try to avoid returning to the psych ward as an inpatient and ideally get discharged from the hospital asap.
I have another ward round to attend on Monday when I will probably get discharged. Maintaining life on the outside though, is the real challenge.
9. Persist with trying to help my partner to get a move to a closer prison as while he is in the current one visiting is pretty impossible for me which is extremely upsetting for us both
It’s so stressful and painful travelling such a long distance for a two hour visit. I just want a chance to see him on a more regular basis.
10. Write to the Home Secretary about my partner’s D category situation and campaign to get him returned to at least open conditions.
My partner has been left in limbo for long enough. Yes he has messed up but he has served the time he was set and now just needs to be given a chance, even if that means supervision, he just wants a chance.
11. Work with my carer and new team from the Community Mental Health services to improve my chances of reaching a better standard of mental wellness.
I should be getting a new CPN (who I will be meeting tomorrow) as well as input from a psychologist. I know how lucky I am to have been given this input and had to fight to achieve it but now the important thing is that I make the most of it as the help could be life-changing and I really need it to be.
12. Share what works for me on this blog so that hopefully I am able to help others.
I really want to help others who are facing the same obstacles as I am, I hope this blog can become a place of encouragement and understanding.
13.Get married. My partner is my first and hopefully, my last love. Neither of us are perfect but I can’t imagine my life without him in it and would love to make that official as soon as possible.
There is a lot to arrange and I know it won’t be easy. A lot of people want me to wait but I love him and our relationship is one of the things that helps me to stay strong.
14. Visit my family. We’ve had a challenging time over recent years and they still struggle to understand me, but I would like to build bridges with them and I’d love to spend some time with my newborn niece.
It will probably be an emotional time full of mixed feelings but it is something that I really need to do asap.
15. Spend more time with old friends. I miss them and no-one understands me better than they do so I need to make more time for them.
This may mean working out a way I can travel more easily or finally making a decision about a permanent move. Either way, my true friends are worth it and I need to give them more focus than I have been.
16. Make a scrapbook of dreams and ambitions for the next 10 years and set about focussing on how to achieve my dreams.
I love scrapbooking and it was a huge help while I was in hospital. I feel like it could be an excellent way for me to focus on my future in a creative manner.
17. Set myself realistic goals, especially to start with, so that I don’t give up or burn out.
This could be by starting with 5-10 minutes a day of writing time or a chapter of a book/ a single short story a night.
18. Travel somewhere I’ve never been before. Or somewhere I’ve been long ago that I liked.
A few possibilities could mean finally getting a passport and visiting my best friend in Sweden or fulfilling my dreams of going to Paris or New York. Alternatively I could start smaller with a weekend break somewhere like Cardiff.
19. If I reach the right level of wellness, apply for the BBC trainee scheme aimed at disabled people.
It has been my dream for years to try for this but I haven’t yet reached the level of wellness that I’d like to be at to make this happen. Fatigue and pain are huge obstacles and I’m hoping that in time I can work out ways to overcome them.
20. Make a decision about whether I should remain in Wales or move back to London. Consider all factors such as finances, social support and health care. Once I’ve made a decision, try to do things to help myself stick to it. Until I make a decision, try not to put my life on hold.
At the moment I’m getting a good standard of mental health care here, but was receiving more physical care and had better medication options in London. Finances play a huge factor so a lot will have to remain to be seen.
21. Persist with my request for a better standard of care for my Ankylosing spondylitis and mental illness, refuse to be fobbed off or made to feel guilty for asking for what I need.
I need to speak to the advocacy service about whether there is any way that I can get more care and support for my physical needs. I also need to make sure that I research thoroughly all the options that are available to me, including by contacting organisations such as National Ankylosing Spondylitis Society (NASS).
22. Make a decision about whether or not to get a cat.
It’s a big responsibility and caring for it may prove a huge strain but it could be a challenge for me to learn to adapt better to.
23. Try to stick to a routine a bit more so that I over-do it less and get better at balancing activity with rest.
I tend to overdo it then crash for days afterwards. I need to get better at balancing out my energy levels by combining any activity with periods of rest.
24. Look into ways I can improve my opportunities to become a freelance writer/journalist and try my best to make it happen.
Read up on ways to break into the industry and spend more time and energy getting my blog posts to a standard that I am pleased with and hope that that speaks to future bosses.
25. Have a relaxing holiday, ideally somewhere I can focus on my writing.
I’ve heard of writing holidays and this sounds like something that is right up my street and definitely something that I should research in the very near future.
26. Make more of an effort to go to literary events both here in Wales and in London and elsewhere. My dream is to go to the Hay festival of literature. If I can’t make this year’s event I should definitely make sure I attend it next year.
Research and budget for whether a weekend in Hay on Wye would be possible as it would be a dream come true to attend it.
27. Set aside time every day for writing. Everything from blog writing, journalism, creative writing exercises, drafting stories.
It would probably also help to set aside a specific place for me to write, perhaps investigate some sort of laptop desk and somewhere to organise my writing research.
28. Set aside time every day for reading – blogs, newspapers and magazines, poetry, books, writing tips etc. Make notes on what I learn.
Reading used to provide such escapism for me but now I need to start reading in a more educated way, learning from those who have gone before me.
29. Try to have more of a distinct online presence. I want to spend more time focussing on my unique qualities instead of the things that have been holding me back.
I need to develop my own clear identity and work at getting that across to people, trying to break the mould instead of fitting into it.
30. Try to make time just to relax, unwind and have fun!!
Pamper sessions, magazines and trashy tv. Anything that helps me to switch off and stops me overthinking.
Anyway enough about my 30 things before I reach 30. What would you like to achieve before your next big birthday? Answer in the comments section below or on Twitter @spursbythebeach.
Well I’ve skipped a task again as I’d already kind of answered the last one, plus this task applied more two days ago when I first wrote it out in rough. Sorry for my delay in posting, my fatigue has been absolutely awful.
Make a list of things that you feel upset about right now. Write down as many as you can think of until you can’t think of anymore. Then choose the top 5:
Not being able to do everything that I want to do for myself:
From carrying myself a cup of tea (at home I have a hatch so don’t have to rely on the kindness of others) , to struggling with grooming, shopping and isolation because I struggle to get to places. Even at home, the local bus stop is minutes away from me but too far for me to get to without severe pain so I remain reliant on taxis or isolated in my own home.
Being on a psychiatric ward
In myself, I feel that this proves that I am weak, that I have given up, lost the fight. The atmosphere is tense at best, there is a lot of paranoia, including from me, which makes it an extremely difficult place to be. On top of that, it’s difficult to unwind, you can’t usually watch TV because of the constant background noise, even reading in your own room is a challenge. This is especially the case because if you do start spending a lot of time in your room then people assume you either have a problem with them or are being stuck-up. On the other hand, if you do come out you have to deal with everyone else’s problems and needs, as well as your own.
I’m worried about whether I’ll ever get to see my partner again.
It’s been 6 months and I miss him so much [especially as I’m typing this while we’re apart on Valentine’s day] . It’s hard because we get to talk so little, writing to him has been hard as my fatigue has been so bad and visits are impossible while I’m a psychiatric inpatient and my money has been cut as a result. Plus the thought of the journey then being trapped in a visiting room with loads of strangers, I just don’t know if I could do it. That thought makes me feel so guilty because I think I should be strong enough to do it for him. I miss him so much and I feel like a complete failure.
Waiting for the result of my hospital professionals’ meeting.
My anxiety about this is overwhelming and I am so convinced after two no’s from my previous assessments that it will be another no from them. If that happens my fear is that I’ll be stuck on a psychiatric ward long-term and I don’t think I could cope with that. My head is such a mess and I don’t see how I could cope alone in my flat without a decent level of support. The option of staying here long-term or being home without help, makes me want to cry.
My poor money-management.
I’m in debt, I’m trying to pay for my carer again because I couldn’t cope without her. I’m struggling to pay for the costs of my disability without Disability Living Allowance. The bills are mounting up and getting ignored, I’m getting chased for past debts and the whole thing is just making me feel ill.
My anxiety is causing me anxiety.
I’m either off my food or binge eating, I’m feeling sick and I just feel like crying all the time. I haven’t had panic attacks this bad since I was 19 (I’m 29 now). I just can’t cope. I can’t handle crowds (even small ones), I can’t handle being alone. It feels like life is impossible.
My paranoia is making me feel so depressed, I’m convinced that the whole world is plotting against me.
I don’t trust most people, I’m even convinced that my partner, who I adore, will get sick of me and leave me. All of the emotional abuse from my childhood is coming back to haunt me. My friends aren’t trusted to really care and I don’t even trust the food on the ward so I’m living on snacks. I’m terrified about what is happening to me.
Being many miles away from my family and friends.
I keep beating myself up for not working things out and managing to stay in London. I feel like I was happier and safer there. I wasn’t cured but I had more support and distraction, I was loved. My partner isn’t far from London and my entire family are over there, including my newborn niece. I feel like I’ve lost everything.
Negative comparison to others
I’m constantly beating myself up for not being a pro blogger by now (a year), a top published author, having the perfect figure and having finally got that Phd I’ve always dreamed of getting (when I didn’t even finish my degree). I compare myself to friends and family who have successful marriages with kids, and I compare myself to others who have talent, dream jobs or travelling opportunities.
Everyone is always on at me to be kinder to myself but I feel like to do that, I should be in a better place in my life rather than unemployed, stuck on a psychiatric ward.
Picking the top 5 things that upset me is really difficult as all of the various things merge into one. If I had to pick, it would probably be:
1.Worry over my partner
2.Frustration over not being able to look after myself properly (physically and financially.
3. My CMHt assessment
4. My anxiety
5. My negative comparison to others.
Day 5’s task, is for each of the 5 things you identified (in the last task), list 10 things you can do to gain control of the situation then pick the top 3 things from each list.
As I want to include explanations with each possible solution before I make my choice I have decided to split each problem into a post on its own so there will be 5 posts linked to this one then later I will hopefully do a follow-up post/s letting you know how I got on with my solutions.
How would you deal with these problems? Are you struggling with similar difficulties? What are your ways of coping? You can comment below or Tweet me @spursbythebeach . I really do look forward to hearing from you.
One recovery strategy that has aided me in the past to improve my mental health is Journalling for self-expression. My task, for at least the next 32 days is to follow the guidance of montrealtherapy.com , Journalling for self-expression tasks .
Each day I will attempt to complete, and post, my target for the day. Others are welcome to join me in this . If you do , post your links or write your thoughts in the comments section below.
This task stemmed from courses I attended at South-west London ‘s recovery college. These were aimed at Journalling for self-expression and telling your story, both of which helped me to open up better, which probably led to me writing this blog.
The first task is to write down what happened that day and how you felt about it (my entry is actually about Wednesday, although I will try to stay more up-to-date in future). I wrote as much as I could remember about a 24 hour timeframe .
I think I woke up pretty early on Wednesday . After a cup of tea, I did some preparation for a blog post but mainly ended up chatting to other people on the ward. The downside of being a blogger in a psychiatric hospital, is that it’s so easy to get involved in other people’s problems/dramas, to procrastinate and never get anything done. To fight against that, and because my body seems to be most active at that time, I’ve been waking up early and trying to get my writing done in the fairly quiet hours on the ward.
9am came around before I knew it and my advocate had arrived. The wheels are in motion for me to have a meeting on the ward of all the professionals trying / trying not to be , involved in my care. This will include the hospital team, my physical disabilities social worker, the CMHT (Community Mental Health Team) and the crisis team.
After that I managed, in a long, tedious, drawn-out, painful process, to get ready for the rest of the day ahead.
What a mess
After this, all I could think about was my partner and helping him out of the financial mess he’s got into in prison, despite the fact that I knew I’d be broke , with big bills due out and my DLA being stopped and overpaid due to the 28 day hospital admission rule not being explained very well by the ward on arrival.. Part of me was also worried about being moved to another ward for a period of time. I know that my mood is currently unstable and I didn’t want it destabilised further by constantly moving between wards.
The great escape
It crossed my mind to do a runner from hospital and go to stay with my mum in London (as you can see, I don’t always think things through with complete clarity). My mum refused to let me stay with her which distressed me further so I got even more distressed. I told the nurse I then went to speak to, that if they wanted to move me wards , they would have to do it forcibly. The nurse was taken aback as I’m usually easygoing, and tried to reassure me, but I was having none of it.
I felt backed into a corner with the quicksand of a mixed episode /rapid cycling deepening and deepening. I was especially concerned about seeing a woman I’d previously been friends with.
After that I called my carer to ask if she could come in early for her last proper day, as I’ve had to let her go, at least temporarily . I was so on edge, I just felt like I was going stir-crazy in the hospital and it made me realise how bad I was going to feel, and how isolated I was going to be in future, without her.
A fixable mistake?
Just before my carer arrived, I had a phone call from my tenancy support worker about my rent arrears. It looks like there has been a mistake with the demand and it is being looked into. I still feel fretful about it but the tenancy support worker has insisted that she has not given up and will be looking into it.
My carer then arrived and we went to sort out the financial stuff that needed doing. This included a problem that had been causing me a great deal of worry.
I went for brunch after a bit of window shopping which ended up delaying me further so I had to rush the meal to get to my friends’ house as they had written me a supporting statement for my PIP assessment form.
What they really think
When I read the statements the ward manger, my carer and friends had written, it made me recognise a few things. Firstly, how much of a trigger my family are to me, secondly, how little independence I have, thirdly, how worried others are about me and lastly, how much I rely on help from other people. This caused me even more anxiety about losing my carer.
We went back to the flat as I was expecting the OT (Occupational Therapist) to visit, furniture to be delivered and to fill in the PIP assessment form with my carer. Nothing got done and I ended up taking diazepam that I had left over from an old prescription, something that, as a hospital inpatient, I am not allowed to do.
I needed to get out and followed my usual pattern of being mixed (depressed and on edge) and overspending money that I really don’t have. I went to Hobbycraft, which is always dangerous for me. In the end I bought some scrapbooking stuff, another book to attempt to organise my chaotic life in, in a pretty way.
I then spent more in M & S getting food treats for me and one of the other girls on the ward.
After that was my last drive back with my carer which made me feel really lost and hopeless.
An old friend
I got back and one of my friends had sent me her number via Facebook and we talked. It turned out that she was depressed and what I said about needing to seek help seemed to have little impact. I pleaded with her to contact the hospital and she said that she would. Not long afterwards I received a text message saying that she had taken a serious overdose. I met her recently in hospital and I don’t have her home address , so, out of my mind with worry, I had to inform the ward staff. They tried to reassure me that they’d called the police and it was ‘in hand’.
After this I deteriorated for most of the evening, I felt really depressed and on edge with the occasional glimmer of ok when friends were able to distract/comfort me, which would then leave me feeling guilty. It didn’t help that I had pain in the opposite arm to the one I have suspected nerve damage in.
What a start to the day
The next day started badly and I ended up experiencing a stabbing pain in my knee while I waited impatiently to see the doctor. The pain didn’t last long but it scared me because of the amount of pain meds I’m already on and how bad the pain was.
When I saw the doctors ( I ended up seeing two) , they said that they didn’t see any evidence of obvious inflammation, this made me feel like they didn’t believe me, although they disagreed. They just told me that the rheumatologist needs to see me. This would be all well and good if I’d been able to visit my flat sooner and received the letter from him in time to get to my appointment, which was due yesterday.
I felt so angry, frustrated and hopeless. This really led to me feeling suicidal. My mood drops so quickly lately that it’s frightening.
A bad combination
It was so hard, with a combination of disturbing memories, stress in the present and fear of the future. There was so much that I longed to do but my belief was so strong that I felt that I couldn’t do it anymore. I try my best to keep on keeping on but it is so hard at the moment. My blogs are kind of safety factors as there is so much that I want to do with them. I just need to believe that I can do it.
My overriding mood for that 24 hours was exhaustion/fatigue whilst being extremely on edge. I’m so scared about how I’m going to cope. I have so many things in my life that need to be sorted out, I just can’t focus on anything in particular and I worry that I will never be able to.
Fearing the future
I’m afraid of isolation, of my pain and mobility levels getting worse, and that despite my efforts, my mental health will continue to become more and more unstable, with mood swings that will lead to me spending more and more time in hospital .
I’m sorry that this has been such a long, overly negative post. I’m not even sure if I will post it.
The phone call
My partner called. He tried to convince me that I need to ask for help more often. He also told me to think about who my friends are, because although people aren’t mind readers and have their own problems, it’s obvious to everyone, especially those who know me, what my difficulties are.
Is anyone else struggling to deal with having a physical disability and/or a mental illness? I feel so alone right now, it would help a lot to know if there are others like me and how they cope. Thanks for listening.